Monday, December 8, 2014

Progress...

When I first started taking Bug to his occupational therapy appointments, his therapist asked what our goal for him was. I remember blinking at her in surprise - goal? Weren't they the ones who were supposed to be setting the goals for him?

"Um, how about getting to the point where we don't have to put as much rice cereal in his formula?" At the time baby boy had some pretty severe constipation due to the rice cereal. We're talking having to give him lactulose and a suppository twice a day because he had developed an umbilical hernia and was developing an inguinal hernia from straining bad. If we could lower the amount we added to his bottles, maybe it would help. Also, letting him decide when he was hungry instead of feeding him every three hours would be nice too.

I didn't think it would ever happen, but Bug has gained so much weight that we're allowed to feed him when he wants - within reason of course. For the most part he's still sticking to a bottle every three hours, but there's been times when he's gone four hours in between bottles.

Then, about a month ago, his occupational therapist decided that we could start feeding him with him sitting upright or cradled in our arms instead of with him on his side. Bug loved it. He really enjoyed looking up at us, looking around at the room, at the TV, the cats. He even started trying to hold his bottle more.

At his last OT appointment, his therapist decided that he was doing so well that she wanted to see how he would handle less rice cereal in his formula. Instead of adding two teaspoons per ounce to his bottle, she added one and a half. He actually handled it very well - so well that she told us we could give him one ounce of formula with one and a half twice a day. This week we're up to one ounce with one and a half teaspoons four times a day, and if he continues doing well, we'll graduate to eight* times a day next week.

In addition to that, his cat scan for his lungs came back normal. There is some evidence of chronic lung disease, so we have to continue with his breathing treatments - but his lungs are no longer enlarged, and his tachypnea has disappeared. Pulmonary wants to keep him on the apnea monitor for now, but they're letting us take it off during the day time now.

Baby boy had developed an umblical hernia shortly after his last hospital stay. The doctors all told us that it should resolve itself eventually, however our pediatrician advised us to tape a coin over his belly button to help things along. It seemed a bit strange (and really old school) but to our complete surprise, it worked! His belly button is back to normal now! However, we still have to go in for an ultrasound to make sure he doesn't have an inguinal hernia this week. I have a feeling that he doesn't have an inquinal hernia at all, as his pediatrician said one of his testes hadn't descended yet, but better safe than sorry.

Bug is also starting to sit up and even stands if we support him. We're thinking of getting him a floor seat for Christmas, and a friend has a jumper she's going to give us.

However, he still hasn't rolled over on his own yet. We probably need to do more tummy time instead of chest to chest time, but it's hard since he's really not a big fan of tummy time. He'll do okay for a few minutes, but eventually he starts getting tired, or frustrated, and crying. Considering how much he likes sitting and standing, but hates tummy time, I have a sneaking suspicion he may skip crawling. According to his occupational therapist, a lot of preemie babies do that, so we'll see what happens!

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